January update

Happy New Year, everyone! May you find many reasons for joy and hope this year.

After about a month off, John is back on chemo again. His first treatment was on Friday, January 8. He lost his appetite (and 10 lbs.) over the weekend, but so far the other side effects haven’t kicked in yet. Basically he just slept a lot.

I gave him his first Grastofil injection today to help keep his white blood cell count up. Six more to go before the next chemo day on the 22nd. Being back on Grastofil means he can probably proceed with treatment uninterrupted until he and the doctor decide it’s time to take a break again. He’ll have another CT scan in about three months to re-evaluate.

Please continue to pray that the chemo will be effective, that God will give the doctors wisdom in their decision making, and that I will have the strength to take care of our family on the days when John is not feeling the best.

Keep praying for the baby too. My last ultrasound the week after Christmas showed she was growing normally, kicking and moving around, and she had a normal heartbeat, so we are very thankful for that. I found out earlier in December that I have gestational diabetes for the first time in my life, so I’ve had to monitor my blood glucose daily and follow a special diet, which so far has helped keep my numbers on target without the need for insulin shots — another thing I’m thankful for.

I’ll close with a little story to brighten your day. Sometimes I use Bible verses for the kids to practice their handwriting, and I stuck a copy of Philippians 4:13 on our fridge back when Harry was memorizing it. It’s been there for months. The other morning, he saw that I was tired and I must have seemed frazzled because he pointed to it and said, “Mom, just remember, whenever you feel weak, read this verse.” I just thought I’d share these words of wisdom from an 8-year-old for anyone else who could use the reminder today.

“I have learned the secret of living in every situation… I can do everything through Christ, who gives me strength.” Philippians‬ ‭4:12-13‬ ‭NLT‬‬

“When peace like a river attendeth my way, when sorrows like sea billows roll, whatever my lot Thou hast taught me to say, ‘It is well, it is well with my soul.’” Horatio G. Spafford

One down, five to go

I am so very thankful to have such a loving and caring wife. She somehow manages to look after me and the kids which she does so well without complaining. 

My rash has spread to my tongue making eating solid foods incredibly painful. But Leanne is constantly bringing me mugs of broth, filling my water, making me a smoothie at the same time she is wrangling our three kids. She is incredible. I am so thankful to God that Leanne is my wife.

My rash does appear to be getting better. It seemed to peak in severity this past Monday.

My rash at peak severity

I had a few more cases of painful diarrhea this week. I’m not sure if the Imodium actually does anything.

My weight has been decreasing over the past few weeks. It’s been really difficult to maintain it, although surprisingly my weight held fairly steady during my broth diet. Now here’s an impressive number: If you compare my weight in 2009, the year Leanne and I got married, with my current weight almost ten years later, I am almost 70 lbs. lighter. A less impressive number would be to say that I am down about 12 lbs. this month.

My appetite has not been too bad but unfortunately I am limited to liquids and soft foods. I am slowly eating more solid foods but it is unlikely that my tongue will have time to heal fully before the onset of the next rash.

On a positive note, I managed to get a decent amount of work done this week.

Tomorrow I start my two-week chemotherapy cycle again. I wouldn’t mind an extra week or two for recovery between cycles, but I know God will give me the strength I need to do it again. Only 5 more cycles to go.

Prayer Requests

  1. Please pray for my tongue. Pray that it will continue to heal quickly and that it will not be affected so severely during the next chemo treatment.
  2. Please pray that my painful diarrhea will become less painful.
  3. Please pray that I pack on a few more pounds. Preferably not 70, but 5 or 10 would be nice. 
  4. Pray for strength. I think I have an idea now of what to expect and I will need God’s help to get through it.