Uncertainty and Emmanuel

John asked me to write a brief update to let you all know how he’s doing. He feels great and has been able to work lots of hours lately. The reason for that, however, is that his most recent blood test showed he did not have enough neutrophils to go ahead with his last chemo treatment on November 26.

The oncologist decided to give him a short break from chemo to allow his bone marrow time to make more neutrophils (bacteria-attacking white blood cells). This will also give his surgical wound more time to heal. John is going back to show it to the surgeon on Monday, then he sees the oncologist again on Wednesday. He has another chemo treatment scheduled for Thursday, December 10, but that will be dependent on the status of his wound and whether he has enough neutrophils. If not they might postpone treatment till January and he will likely need Grastofil injections again.

Thank you for continuing to pray for our family. I realize that we are all living with some degree of uncertainty right now and facing the prospect of a different kind of Christmas than usual, so I want to share something that encouraged me this week.

Our church had sent us an Advent box with activities to do at home with the kids. Last week the theme was Hope, and one of the activities was to have them draw a picture of themselves in a scary situation (e.g. alone in a dark bedroom with a monster’s eyes peeking under the closet door). Then we talked about how Jesus is always with us and how the name Emmanuel, which we sing in a familiar Christmas carol, actually means “God with us.” Finally, the kids were asked to add one more thing to their drawing: Jesus standing right there beside them. To me, that was such a comforting reminder! Whatever our future holds, Jesus will be right there with us. Emmanuel.

“So do not be afraid. I am with you. Do not be terrified. I am your God. I will make you strong and help you. I will hold you safe in my hands. I always do what is right.”

‭‭Isaiah‬ ‭41:10‬ ‭NIRV‬‬

Magnolia, Harry and Daisy
Magnolia, Harry and Daisy

Neutrophils and carcinoembryonic antigens

I failed my blood test again today which means chemotherapy is once again postponed until next Friday (April 5th). My neutrophils (white blood cells) are still too low for chemotherapy and in fact are even lower than they were last week. To combat my neutropenia I will need to start receiving a week’s worth of daily Grastofil injections for each chemo cycle. This time I’m only getting five injections instead of seven due to the upcoming chemo treatment being only one week away (the injections must stop 48 hours before chemo begins). I had to pay out of pocket for the first batch of Grastofil (and could have bought two iPads for the same price) but it sounds like the Ontario Trillium Drug plan and the manufacturer of the drug are able to cover at least some of the cost going forward.

My doctor did have some positive news for me today. Apparently my blood tests have shown a significant decrease in my carcinoembryonic antigen (CEA) level. CEA is a protein that can be an indicator of cancer, especially colorectal cancer. My CEA level was 887.8 on Jan 23 and has dropped to 123.8 as of Mar 21. The doctor says this is really good and that if this continues we may be discussing the surgical removal of Tony when my chemotherapy treatments are complete. Praise the Lord! I have a CT scan booked for May 23, and hopefully these images show further evidence of healing.

Please continue to pray. My number one concern right now is my white blood cell count. I can’t get back on chemo until they climb back to a suitable level.

Thank God for this good news.