We finally have updates on a few things. Since we last talked about drainage we’ll start there. I still have yet to be drained. It sounds like we’re going to talk to a specialist about getting some CT-guided drainage. My palliative care team was supposed to be getting in contact with them this week but we’re still waiting to hear back about that. Meanwhile, the painkillers seem to be working for me. I’m also on two different water pills to try to alleviate some of the fluid build-up.
We have also finally received word from my oncologist in a roundabout way. I now actually have a potential start date for a new treatment. Again, I have yet to speak directly to my oncologist which is a little disappointing but I’ve been approved for compassionate care (ie. free drugs) and they will be delivering the drugs next week. Somehow I’ve been approved to try a chemo pill without actually talking to an oncologist.
The palliative care team has been taking really good care of me. The nurses have been visiting us pretty much every other day.
There seem to be several problems we’re trying to solve at once: the build-up of fluid, the pain, and of course the cancer that has spread to my liver. But it looks like I’ve got a good care (and prayer) team behind me.